An Author Save Me – From Gastroparesis Self Destruct

I owe a LOT to Crystal Saltrelli, CHC and her book Living (Well) With Gastroparesis (http://livingwithgastroparesis.com/get-help/books/).   I was so lost and alone after being diagnosed with gastroparesis.  My GI Dr at that time did not help me and only told me to 5 – 6 small meals a day that are low in fat and fiber.  She promised if I did this, I would be all better in a year.  Well, I have done this and am going over a year and feel as much pain as I did then. 

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Anyway, I didn’t know what I was to ‘eat’.  So I did what any person does in this day and age…. hit the Internet.  I slowly began to grasp what the GP Friendly foods were.  Then had to eliminate a lot of those due to personal allergies.  I looked at my options through my tears not knowing how I would survive on what was in front of me. 

So, I wondered if any body else was like me.  I was already on Facebook at the time to play games and interact with my friends, so I searched for Gastroparesis Groups.  I found some and was frightened at what I was reading: deaths, feeding tubes, people unable to manage their pain, etc.   What was going to happen to me?!   I cried, in private to not scare my husband. 

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Then I found Crystal Saltrelli and her website, then her Youtube videos.  There was a spark of hope deep inside of me that I may not die after all.  This may not be a slow death sentence.  I found she had a book, then looked to see if it was at a store in my town.  Of course not!  So I ordered it and paid for rush shipping!   I could not wait to understand what I needed to do to survive GP!  As the days passed, I watched all I could of her videos and followed per page.  Each day, I felt like there was hope.

The book came and I dove right into it with my highlighter and sticky notes!  I was determined to figure out what I needed to get me healthy again, what treatment options there were and what on earth I needed to do to ‘fix’ me!

Sadly, there is no cure.  But I learned what options were out there, what to eat and most of all to try my best to remain up-beat so I could pull myself out of the funk and get on with my life. 

From there it just snow balled.  My desire to advocate for myself, get a GI Dr that I could trust, then to volunteer for a non-profit (G-PACT) and lastly, to help others like me by doing all I can to spread the word that Gastroparesis exists and needs a cure!  

I owe all of this to Crystal Saltrelli.  If it wasn’t for her, I feel my husband may have had me committed to a white padded room with a vomit bag!   I was in such a deep dark place, it was scary.   

I know that the author may not read this blog, but my heart felt THANK YOU is being said and also HAPPY BIRTHDAY.  She was so kind to offer a discount to people on her b-day, so I took advantage and bought her e-book on juicing.  I need to learn how and what combos are best.  This is my next big step to better health.  So far, so good.  I have maintained weight, my hair is no longer falling out and I am not vomiting as much.  My life is on track of where I want it to be.  Thanks Crystal!!

5 responses to this post.

  1. Posted by In the Shadows on June 13, 2013 at 7:33 pm

    The “Living Well with Gastroparesis” book contains good solid information regarding nutrition and food choices for those suffering with GP.

    Unfortunately for me, I found the rest of the information in the book to be too simplistic. Some of her “self-‘help” sections, regarding GP, I felt were “common sense” matters. Therefore, I felt that she could have gone into more depth on certain issues. Also, the majority of the other information I already knew from my own GP research prior to purchasing this book. Therefore, I was looking for “newer” information.

    I don’t understand why the author published the book “Eating for Gastroparesis.” Some of the recipes in this book are repeats/variations of recipes from the larger book. Basically, this book is a smaller version of the larger book, with a few new recipes added.

    She does sell an e-book on her website called, “GP Friendly Baking.” The cost is $9.99, and contains some good recipes for when you want to calm the inner sweet tooth, while suffering with GP. Though many of the recipes I still can’t eat, I’ve found a few that agree with my stomach.

    Reply

    • I agree that the book didn’t go in depth. For me I was starting from square one, so any info I soaked up. What little info i found on line, including FB groups i asked questions in, didnt help. Im sure it was because i didnt know where to go andwhat to believe. Also the recipe book was a little disappointing, but I keep it with my cool books, which makes it justifiable (to me). Most of the main book seemed to be addressed in the videos she has. I did see the baking one, but opted for the juicing one. It was 25% off the other day, so worth the gamble. Sorry you can’t eat many in the baking book. Hope you have a few you can go to, to satisfy your sweet tooth. It’s always a pleasure to hear from you.

      Reply

    • @Shadows, I published “Eating” prior to “Living (Well!).” I’m sorry that you didn’t find all of the info that you were looking for, but I hope what you did find was helpful! My hope is that the book reaches people soon after diagnosis and provides them with a thorough understanding of the condition and the many options for management, as well as some encouragement and support, as I know most of us are pretty overwhelmed and confused initially.

      Reply

  2. Melissa, thanks for the kind words! So glad that the book and videos were helpful, and blessed to be a part of your journey. Enjoy juicing and blending!! Thanks for the Birthday wishes 🙂

    Reply

    • I always recommend your book to those who are lost in their journey. Always been a strong advocate for you and just wanted the world to know how you turned my life around. Hugs to you and your family.

      Reply

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