Posts Tagged ‘GP’

Muffin Tins For Leftovers?

Today was a rare day in the way that I was cooking just for me.   Tacos sounded good and I had 1/2 pound of frozen hamburger along with a little cheese and a potato.   “Potato”, you ask?   Yes!  I am a little odd and like a small amount of taco meat on a potato.   I know my stomach does well with potatoes, so YES, a potato and taco meat.

As I am cooking the meat, I know I am only going to eat about 1/3 of a cup.   The next day my tummy will not accept the taco meat, so it sits in the fridge for many days and seems to end up in the trash. 

How can I prevent all that money going into the landfill?   I bright bulb came on in my head and the image of a muffin tin glistened.  This is perfect!  I can portion it out based on what I can tolerate. 

Cook up the meat as normal, let the leftovers cool, divide it into muffin tins and set it in the freezer.   I keep mine in the freezer for a good 24 hours (to ensure it is solid) and put the taco meat pucks into a freezer bag or storage container.   Next time I want tacos, I simply grab one, heat it and enjoy! 

 

This can be done for all sorts of things in mini, large or regular size muffin tins:

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  • Shredded chicken
  • Shredded pork
  • Ground turkey
  • Diced up ham
  • Sloppy Joes
  • Macaroni and Cheese
  • Casseroles
  • Mashed potatoes
  • Soups
  • Anything pureed

 

The key to doing this is to make sure that the container you put the frozen product into, is of good quality so air does not get into it and therefore, it will last longer in the freezer. 

 

If you are going to do this on a frequent basis, I suggest you spend the money to get the silicone muffin tins.   The food comes out of them so much easier!

 

 

I Was Very Bad – Stupid Emotions

After the bad GI Dr visit (Part 1 herePart 2 here), I was very upset.  I know how I feel and it feels like gastroparesis, just like my first GI Dr diagnosed me with from the 2 hr GES test.   But now this GI Dr will not diagnose me with it until I have a 4 hr GES test.

Unfortunately what I focused on when I got home was how she didn’t think I had GP, but rather something neurological.

I was so tired when I got home, I watched my couple of favorite tv shows and then took a nap.  2 hours later I woke, still upset and now needing something to eat.  Since I didn’t feel good (GP wise), I wasn’t hungry but hadn’t ate anything all day.   So, what do I reach for?  A smoothie?  Soup?  No and No.

ImageMy mind went to, ‘what can I eat that is high in fat and high in fiber?’, ‘if I don’t have gp then it will not matter what I eat’.   Not a good thought.   I wished my husband was home and he could have stopped this self destruct.   I made something very bad for me and in a very large amount.  The amount that I would have eaten, pre-gp.   Then looked at it one last time before I dove in!  I never had a second thought.  When tears ran down my face, I should have stopped.  It wasn’t from the physical pain, but the emotional pain of that stupid GI Dr meeting.

The thoughts of how I held her so high on a pedestal and how hurt I was with today.   How could any Dr do that?  But I knew the answer to that.  My 1st GI Dr was that way, yet I still think she was a little worse.

For some reason the meal did not hit me as bad as I expected.  I really didn’t have any other heightened issues from eating that.   Then that part worried me.  Maybe I don’t have GP, since I didn’t have the reaction I was expecting.   Then the past came flooding in.  Why was I not throwing up as much as I was when I was first diagnosed.  Am I getting better?  I didn’t think so.  None of my family thinks so.  So, what is wrong with me?

I was on the fence to decide if I wanted the GES test done, as it could effect my disability claim down the road.  But with all of these thoughts in my head, I have given in and will go do the test.

In now way am I recommending that you go off of your GP ‘diet’ and have a food-frenzy as I did.  That action could land you in ER.   I am sorry that I did it. Yet happy for it, as it helped me decide what I need to do next in my medical journey.

A Disappointing GI Dr Follow Up (Part 2)

This is continued from Part 1 (Click Here ).    In Part 1 I told you how it took me a little over 3 weeks to wait 10 weeks for the actual appointment with my GI Doc.

The long wait was filled with my ‘normal’ symptoms.  Nothing better, nothing worse.  And finally the appointment day was here!  I was excited as I had not seen her since October 2012, but we spoke on the phone several times and even during her maternity leave.  She was new to the profession, but on top of gastroparesis, which is why we got along so great.

I was asked to come in at 8:45am for a 9am appointment, just to get the new computer system up to date with my info.   That was fine, my insurance had changed as well as my address since my last true visit.   It was a bad GP morning (as most mornings that I have to get out of bed before 9am).   A few stops to the bathroom and I made the 30 min trip by car to see her, but I made it and on time!

The check in did take that long.  I looked at my phone when I sat down and it was straight up 9am.  I figured I would be called back soon and didn’t get too settled.  My mistake.  At 9:20am I was getting a little anxious and updated my FB Status (that’s how I know what time it was).  A few seconds later, the nurse came to take me back.  Thank goodness.

ImageThe nurse part was the same as always with questions and stats.  Took just a few minutes, as not much had changed with my history.  Like normal she said the Dr would be right in.  I hoped so, we were already past my appointment time and I had brought a 1 page print out of topics I wanted to address.

I got down off the exam table to get my sheet of questions and pen, glancing at my phone for a time.   Isn’t it convenient that they never put a clock in the room?!   Well we were up to 9:35a and still no Dr.  About a min or 2 later, she came in.  Thank goodness!  I am so ready to get help and catch up with her and her new child!

Chit Chat was not going to happen.  She was in a horrid mood!  She founded when I said I was not feeling any better.  We went over (very briefly) what I tried to eat and what my ‘issues’ were.  I kept getting cut off when she was asking me things.  I would continue to talk and she would go back to her computer.  Grrr.  I was not getting any where.  She had a problem getting my old records up and called a tech to come in.  Then asked if I had been to the Neuro Dr that she told me to (back in Oct), I did not.  That didn’t make her happy either.  I said I was planning on it since a Disability Eye Dr told me I was having minor issues.  I then told her I applied, told her I lost my job, lost the unemployment appeal in court.   I never went into detail as I was loosing her focus and as soon as I said the word ‘disability’ she became very cold.

My other goal to go there was to see if she would be on my side should (when) I need to do the appeal for disability.   A credible GI Dr of mine would help a lot.  Guess that isn’t going to happen.

She laid into me saying that she can not diagnose me with gastroparesis based on the 2 hr Gasteric Emptying Study that I had done.   The 2 hr test was done by the 1st GI Dr and based on the results I was diagnosed with GP.  Click here for my blog on that.   But this GI Dr does not believe in any results of a 2 hr GES.  She made that clear the first time I saw here and I agree for the most part.  Our town would not do anything longer than 2hrs and didn’t even want to do it for that long.  I was told at 30 min it was okay to go.  But now she has the clinic that does it to agree to do just her patients with the 4 hr test.   And now wants me to do it for this long and go from there (to be diagnosed or not with gastroparesis – by her).

Doing this could hurt my disability, if the GES comes back better or in the even that my delayed emptying is not that delayed at 4 hours.   Then she will not diagnose me with GP and I would have to do a disability appeal based on just my symptoms, as we would not know what the heck is wrong with me at that point.

At 9:46a I was being walked out by her.   I have a print out that tells me so.   It also tells me to get the GES and to take Mirolax to improve my bowel movements.

I set up the GES and have thought long and hard about it.   The 2 hr was bad enough for me.  My butt and legs went to sleep.  I can’t imagine 4 hrs, plus if I don’t get protein in my every 2 – 3 hours then I become very dizzy and at times have fainted.   But, setting that aside, I want to know what the heck is wrong with me for sure.  If it isn’t GP, than it probably is Neuro.   Don’t worry, I will never give up the GP Fight!  I still fully believe that is what I have, but I guess GES test will tell me how delayed my tummy is!

The insurance company I have, has no co-pays.  What they do is,  I have to pay out of pocket 100% of the Dr visit and that amount is then deducted from the deductible ($5,000 family).  I looked on my prior bill (different ins co then), but walking in the office was billed at $500.  That was one heck of a 11 min Dr visit!

So that too pissed me off yesterday and I found an email to send a complain to.  Well,  I found 2 places to send it to and I did!   No, I don’t expect anything to come of it.  But felt better that I got it off my chest.  When the bill comes you can count on another copy of my email going inside of it!

THE END

Info on swimming with feeding tubes

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This summer some of you may want to swim, but may not know if it is okay with a feeding tube. 

Here is a great article by Oley Foundation on the topic!    Info on swimming with feeding tubes (click here)

Be safe and have fun this summer!

Happy 4th of July (2013)

Happy 4th of July (2013)

Some of us will stay inside and hide from the people, parties and food. Others will venture our side of their comfort zone to try some food, knowing they may get sick. Why would they do that? Simply because they want to feel ‘normal’ and fit in.

To make the event a little better for you, it is best (I know – not as fun) to stay with foods that you know you can tolerate.  As an extra step, I always take a small cooler of ‘foods’ that I can tolerate, drinks and emergency medications.   This way I know I will be able to have something at the event.   You can either slip out and eat it at your car, or take it with you.  There is no shame in eating what your body will tolerate in front of others.  This is how we survive (and with less side effects).    Lastly, if they ask you to bring a dish, that is your chance to bring a dish that you can eat!

What ever you decide to do today, I hope you have a good day and enjoy it to the best of your ability!

Gastroparesis ‘Pain, Nausea & Fatigue’ Frogs

Gastroparesis 'Pain, Nausea & Fatigue' Frogs

“Hanging On For The Fight Of Our Life”. This is dedicated to all those that suffer from a chronic illness.

Photo is property of Melissa (GP Fight) McElfresh as of it’s creation date of July 1, 2013.

I’m stronger than that reality tv chick….

I just wanted my first episode on the Discovery Channel called ‘Naked & Afraid’.   Anybody ever watch this?  Well, I only saw it because I was too lazy to change the channel!  Yet it captivated me and I watched the full hour.  Here is the link to the one I saw (it’s free) and what I am going to do a quick blog on.  Just because it was funny thinking about gastroparesis and the chick on the show!

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Basically the show is a man and woman that have never met, are dropped into the wilderness to survive for 21 days with only 1 item (of their choosing) each.  Yes, they are naked (of course it is censored).  

During the one I watched, they were able to eat a snake about day 7 and then later a turtle.  Well, the turtle made the gal sick for 3 days and the guy was upset that he had to: hunt, keep the fire going and tend to her.  She had food poisoning and puked her guts out.  Any GPer out there know that feeling?!  (insert laugh)  Then became dehydrated.  Hmmm… do we know what that is like?   In the mean time the guy doing all this extra ‘work’ became physically drained and started to be a real a** to her and then would shrug it off saying he was just ‘tired’.   Again… do we know that feeling?!  I also got to see the time elapse and them both shed the pounds off their bodies.   Luckily with my GP I only lost 15 pounds, but know some of you have lost much more and yet others go the other direction. 

I know I could not do the elements that they were in and the next episode coming on is set in Africa.  The heat alone would kill me off!   So, I am not saying that I could have done better than her.   Maybe in my pre-GP state (haha).

What is my point?  Yes, I know that I could not have taken their spot in the show.   But, I am very proud to know that I over come what they went through (for their 21 days) everyday!  The gal in the show said what a mental toll it takes …. well, yes GP does too!

Keep fighting my wonderful GP Family!  One day we will overcome this!!

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